Baby with fatal brain disorder saved by anonymous $47K donation

A Florida baby who was given just weeks to live is thriving today — and it wouldn’t have been possible without the generosity of an anonymous donor who covered her medical bills.When Bill and Meg Longhenry welcomed their second child, Millie, in August 2023, they were told she had no hope of survival due to a rare and severe congenital brain disorder called alobar holoprosencephaly (HPE).HPE affects about one in 10,000 live births, and most infants do not survive beyond the first week, statistics show.Millie was born with the most severe form of the disease.“We found out that she has a rare brain malformation where part of her brain didn’t develop, and the other part didn’t develop correctly,” Meg Longhenry said in an on-camera interview with Fox News Digital. “So there’s no division between the two hemispheres and the middle is hollow.”Doctors told the parents that “Millie should have been a miscarriage or a stillbirth,” her mother said.

“She should have died moments after birth.”“They told us over 95% of patients with this diagnosis don’t survive past the first few months … and anyone who survives past that requires an enormous deal of medical care, like feeding tubes and breathing tubes,” said Bill Longhenry.“Usually they have no brain function.”After spending two months in the hospital, Millie was sent home on hospice care with four to six months to live — but the Longhenrys weren’t ready to give up.“God had something else in mind,” said Bill Longhenry.

“God had a different plan, and only God was able to really make that decision.”A friend recommended that Millie’s parents connect with Dr.Brandon Crawford, a functional neurologist at the NeuroSolution Center of Austin, who specializes in using non-invasive techniques without drugs or surgery.Upon reviewing MRIs and examining Millie, Crawford said he saw “huge potential.”While much of her brain is missing, he said, the higher portion is “relativel...